Starting Off Slowly

This year has not started off as I thought it would have. I’ve spent the vast majority of 2018 being ill. Not the typical flu bug, but getting ill from a medication that I had full trust in the doctor to give me. I’m still getting over this and I feel much better. It will however take some time to recuperate.

I am going to spend my time sitting and crocheting as I feel up to it. I need massive amounts of sleep, probable best for now to let my body heal. I had wanted to write more in this blog and have gotten side tracked…derailed as it were.

Be that as it may, while I am resting and sleeping, I can let my “imagination” run wild! pexels-photo-279470.jpeg

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I Don’t Pretend To Be Sick…I Pretend To Be Okay

I don’t know how many of you have an autoimmune disease, but the ones that do, know exactly what my title means. The amount of energy it takes to do anything at all is enormous, and it will take us days to recover.painpain-dark

Most of the time I find myself falling asleep if I sit down for any length of time. I don’t do it on purpose, my body just shuts down. I have learned to listen to my body, because when I don’t, I end up in the hospital.

My husband has been my rock. He is simply amazing. He does the laundry, washes the dishes, runs the sweeper and other numerous things. He knows that I simply can not do these things anymore. I do little things like dust, fold the towels and other small things. I don’t know how many times he has rescued me from myself. (Found me doing things that will disable me for days and stopped me.)

I have gotten a new rheumatologist that I saw a few weeks ago. My old rheumatologist and I didn’t see eye to eye on many things. One of which was pain. I have Gouty Arthritis (osteoarthritis, fibromyalgia, degenerative disc disease) which is extremely painful and when I am in a flair, my joints swell up with Uric Acid Crystals which you can actually feel through my skin. My new rheumatologist is wonderful. We are working together on a pain management plan that I am more than willing to try. So far…so good.

I am not writing this to complain. I am writing to inform others how people with an autoimmune disease feel. It is an invisible disease. You can’t see anything wrong with us, but trust me, there is plenty wrong. So when you hear someone say that they have an autoimmune disease, don’t downplay it and whatever you do, don’t offer any advice unless you have an autoimmune disease too…cause you just don’t know.